Unusual Symptoms

CFS/Fibromyalgia

I was first diagnosed with Fibromyalgia or CFS by a neropsychologist in 2011. In 2013 I was diagnosed with CFS. These are the criteria for Fibromyalgia from the National Institute of Health (NIH) and these are the criteria for CFS from the National Institute of Health. In simple terms if you have more pain than fatigue you have fibromyalgia. If you have more fatigue than pain you have CFS. While on medication I have more fatigue than pain.

In March of 2013 I came under the care of Dr. M.C. He ran an extensive battery of test (see following), and he found something. Three of the genes that make enzymes that metabolize different things in my liver were mutated and not making the enzymes. The enzymes added a hydroxyl ion to the various substances which made them attractive to the liver where they would normally be metabolized and excreted.

I he recommended 200 mg/day Acetyl-Glutathion. This improved my strength. I was living a 4 hour day. This improved my strength so that my day extended to 7 hours. He recommended I raise the dosage to 400 mg/day. I am stronger but still experimenting for my limits.

The results of another DNA test that targeted genes that make enzymes in the methylation cycle also showed mutated genes. We will be dealing with this soon.

The test for harmful hydrocarbon substances found a number of them.

He recommended I buy a sauna blanket. It is like a sleeping bag that heats up. Every other day I am to bake for 25 minutes and then take a 20 second cold shower. I can tolerate every third day. This is to sweat out toxic substances.

He recommended I eat 5 Pringle's BBQ flavor chips a day. There is a substance in them that acts as a bile binder which helps get the hydrocarbons out of my blood stream and excreted.

The tests include one for toxic metals in my urine. The test did not find anything of significance. Most readings were below detectable limits.

He tested me for Lyme disease antibodies and other tick born bacteria. He tested me for Epstein Bar antibodies and Herpies 6 antibodies. I have neither although I might have seen Epstein Bar and Herpies 6 in the past.

There were many additional tests. See below.